Monday 2 January 2017

Thu, Dec 15, 2016 at 1:28 PM

She has had a temp for weeks. It was only about 38.5 degrees C when I brought her in. (It has been hovering around 38-40 for a couple of weeks - but that was when we decided to start checking.)
They are giving a plasma exchange. 
They don't yet know if it's an infection or the lupus. They don't think it's the Methotrexate.
Shannon is just about to arrive to relieve me. It's been a big day.

Note:  Elise has been very sick for the last few weeks. The last two weeks she has been mostly in bed, with constant high temperatures, high nausea, headaches, almost not eating anything and in significant pain. Pain being mostly lower back, around the spine and radiating down the legs. We've been giving daily back and leg massages to help the pain. She was also having trouble urinating and bowel motions were causing tears. Rang the Rheumatology clinic on Monday 12th concerned, perhaps caused by increase in Methotrexate dose from 10mg to 15mg per week (was increased the previous week). Clinic advised stopping methotrexate. So no MTX on Monday night. Elise deteriorated, rang Pain Clinic on Wednesday concerned about her pain and they said they would call us back. They didn't get back to us and Wed night Elise was in distress.

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