Sunday 29 January 2017

Sun 29 Jan 2017

Today we took Elise on her first outing. It was to Chadstone shopping centre. Getting the mechanics done was a challenge for first timers, transferring from wheelchair to car, disassembling the wheelchair and fitting in the car, finding suitable car parks and ramps, etc. The good news is that all these things worked out well in the end and the trip was a huge success.

Two videos of Elise cruising around Chadstone.
https://goo.gl/photos/nm3C7tqKNmzHK9Kb8


A message from Elise.
https://goo.gl/photos/QWqyHQtqeDVnfJgD9

Medically Elise is on track. Today we were told that her inflammatory markers were really down (eg. ESR 12, it was 120+ on admission) and other important blood markers are looking good, so the chemo is doing it's job. Everything is heading in the right direction, including her newfound sensitivity on her tummy (she can feel me tickling her!)...an indication of some spinal healing around the T10 level - this includes remyelination, re-programming, rewiring and a reduction in inflammation. Obviously, sensation recovery goes from the top towards the toes as signals need to get to the brain. So hopefully, some hip recovery will be occur in the coming months. All in God's trustworthy hands.






3 comments:

  1. It's so good to hear you, Elise, and to see you out and about again! We love your blog and keep you and your family in our prayers. We are looking forward to seeing Erica and Will home from Conference tomorrow morning. They are sad to leave many new friends so far away. Maybe they bumped into Jesse while they were there? Gods blessings and love to all your family, Keren

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  2. Dear Elise, that's so exciting that you were able to have a trip to Chaddy! I was there last week for the first time in ages and was blown away by the new section that amazing roof thing!! Do you get to choose the colour of your new wheel chair? Hot pink with white polka dots would be nice ;)! thanks for your video! Hugs and prayers. The Naths XXXX

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  3. So happy you are making such progress Elise! I hope to see you soon. Love

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