Today Elise was measured for a wheelchair...a titanium chair built in America to fit her body. This is nothing unusual, wheelchairs for active users are high end and there are only two companies that are contenders. This is very necessary to minimise shoulder/arm strain which inevitably comes with self-propelling. There are "endless" options on the chair - it has taken quite a few late night hours of research to look at pros and cons. Wheelchair salesman got a shock, a mother that actually knew her stuff! Well, knowledge is power and we'll get a much better chair as a result. He went back to his office chuckling, with a story to tell. Well, brightened his day.
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| Similar to what is on order |
Still stuck in a hard place with disability funding - the conversion of Disability funding from State to Nationally run is happening this year. That means teething problems en masse. So when we actually get funding for a chair etc will be interesting. Social worker is looking into other funding bodies. We are waiting on funding really because there is going to be many ongoing significant costs, so we need to start at the beginning and get into the system. If all fails, we will pay for it.
Chemo! It's chemo week again. Comes around too quickly, either Wednesday or Thursday. Another increase in dose and lots and lots of anti-nausea!
Today Elise had her final fitting for AFO's, sounds like aliens or something but it is just ankle braces so she can keep her achilles tendon stretched for standing (otherwise the tighten up and it incredibly difficult to lengthen them again. Elise thinks of them as her new gumboots. Tomorrow they'll bring them back trimmed. A relief to get the enormous, ill-fitting temporary ones off - her duck feet look.
Hi Elise, since I have been banned from talking about Flags, I have been racking my brains to move on to another subject - automatic opening and closing chook door - very interesting I will explain further in my next blog love jim
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