Elise had an excellent weekend as she had lots of friends and relatives visiting while we were enjoying a well earned break at Blairgowrie. Elise has been feeling a bit sick and nauseated post chemo, but managed to enjoy herself anyway.
Today we had a family meeting with the Rheumatologists to discuss their long term Lupus strategy. Not easy listening to them discuss it's severity, rarity and uncertainty of treatment results. It is a real balancing act...just like a real chemistry set.
Her next dose of chemo is likely to be very large, maybe 1000mg, depending what her bloods show over the 3 samples taken over the next 14 days. Hopefully, she won't need the high dose as she is feeling sick enough as it is.
Unfortunately her body weight has recently dropped 25%, much of it being muscle. The fact that she has been off her food doesn't help! She has been eating a bit over the last couple of days though. Received a strong lecture from the Nutritionist today, "no she doesn't have an eating disorder!" Elise loves food, but when you're sick and constipated at the same time eating loses it's shine.
Dear Elise,
ReplyDeleteHow great is our and God's love for you. I know that it is hard sometimes and you seem to be alone,y you feel like the water is just too deep to swim through. But, just know that you can and will get through this.xx
God bless,
Ariana
Hi Elise,
ReplyDeleteI am about chicken doors automatic for a while unless told it is "silly". If you forget to lock the chooks in at night there is more than likely the fox will intervene. Foxes in Mentone -yes in fact foxes everywhere and probably less than a couple of 100 metres from your where you are. Easy to forget to lock up the chooks or not return early enough in the night and Bingo you find only a lot of feathers in the yard - it has happened once to us and it is distressing so you see how important are automatic chook doors.
to be continued
love jim and christine
Interesting topic....Our neighbours asked the kids to feed their chooks while they went away, and to collect the eggs. They said that locking them in wasn't needed as they had an automatic chook pen door. Anyway the door malfunctioned and the kids found the chooks had been discovered free by the foxes overnight. So these are also problem in Perth!! Love Keren
DeleteHi Richards family....you're all inspiring and the updates are really good to read, small improvements, plans etc...are all hopeful and in Gods timing. Hoping you enjoyed your visitors on the weekend Elise, and your respite weekend away Stuart and Shannon....God bless you all with healing, patience and support. Love and prayers, Bec Walker and family
ReplyDelete