A typical not so typical day...11th Jan 2016

Arrived (Shannon) at hospital at 10am, later than usual. Today's schedule is quiet today.
So I though I would list everything that happened to give an idea of her day.

So this is what happened today between 10am to 4.20pm when I left to pickup Poppy.

10:00am     Cleaned room quickly and brushed Elise's hair, she did her teeth etc.


10:10am    Urology team of 3 arrived plus head Stomal/urology specialist to discuss bladder/kidney scans and future plans. 10:15am Rehab Neurologist arrived but left to come back later.

10:30am     Nurse, schedule changes

10:36-11:20am    Physio Tanya, gym work

11:25am   Nurse, move from wheelchair to bed via slider

11:30-45am   Urologist in for toileting

11:50am   Transfer from bed to commode for showering...mum helping with shower

12:20am   Neuro arrived, Elise not decent so they left

12:30am   Back in bed, Rehab neurologist Tripti and Head Paediatrician Sabine visit

12:50am   Rheum team arrive (3) Registrar, Head Rheum Sue Piper and Rheum/urologist Frayer

12:55am   Vistor - neighbour,  Laura who works as a nurse at Monash.

1pm   Finally lunch! Shannon massaged legs while eating.

1:15pm   Rush to set-up for nap. Repositioning, leg splints etc. Sleep

2:15pm   Man arrived to transfer to Ultrasound department. Ultrasound of bladder and kidney incl. catherisation and second scan.  Kidneys and bladder all good. Apparently Elise has an iron bladder!

4:20pm   End scan. Waiting to be transferred to room.
Scheduled afternoon Rehab cancelled.  Mum left to get Poppy.