Thu 12 Oct Personal Trainer trial

Today was the first day of the visit to our local boutique gymnasium...as it is apparently called, actually it is a very small gym run by 3 personal trainers which happens to be just down the road. Very convenient. Shannon, Jesse, Elise and Poppy all attended for a trial 45 min session with Curtis Palmer, a Gold winner para-olympian rugby player.

Monash hosp wants Elise to slowly transition to a schedule of gym with a personal trainer and other sports such as horse-riding/swimming etc as the hospital rehab slows down. Normally 12 months rehab is allocated for chronic illness/injury but Lupus TM is slower, usually 2 years. So Monash hosp aims to continue physio for approx one more year. With NDIS in view, it is time to start planning for funding help. Elise needs long-term intensive physical activity - the paralysis changes her muscle fibers so if she stops, the consequences are really really bad...joint and muscular deformity. Also, she needs to push everything in order to maximise functional return.

Pivotal Health and Fitness

Jesse working out with Elise

Video link of all the action
https://photos.app.goo.gl/rRDnepgFgnXYEKUn2

UTI's and Clonus, leg shaking and stiffness, are a continuing problem and is driving Elise mad.