About a week ago, my sister lovingly surprised me by setting up a GoFundMe page for Elise. Her rationale being that, although we are fine financially, Elise will have many ongoing financial costs (some will be government funded) and some family and friends would like to help out - more of a showing of love and support rather than urgent need. It was a very loving thing to do.
We have been inundated with kind offers of help over the last few months - offering cleaning, gardening, child-sitting and finances. Yes, some things have fallen by the way side (our garden is, umm...well, needing an overhaul) but nothing of significant importance. It has been so helpful emotionally just knowing support is generously available if we need it - and we may need it when Elise comes home initially. Most importantly everyone has been praying for us...we treasure this and really feel supported, loved and held by our Family and our fellow family in Christ.
Yesterday, we found out that my sister's GoFundMe page was linked to Facebook (I am a complete ignoramus when it comes to Facebook) and has typically been kindly shared out. We are aware this may create confusion, some people don't know our situation and may be lead to thinking we are in desperate financial straights (although the Funding page doesn't indicate this in any way). So, if you hear of concern mentioned, please take the opportunity to clarify the situation.
On the topic of funding, yes, it is going to be very expensive for a long time and we will have to re-organise our finances to manage. We are very blessed financially and are so thankful that our Heavenly Father has given us a really good financial basis. Hopefully NDIS, the coming new national disability funding government program will pay for her main costs - this is a process of negotiation and wait and see. For those who are interested, it appears that they have a system of helping but not fully paying. So, if I say Elise will need $10k/year for toileting consumables, they may offer $4k and we have to pay the rest. What a blessing we live in a welfare country and not someplace like America or even much worse, sub-Saharan Africa.
Hopefully this will give you all a clear idea of where we are at.
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