Today Elise was measured for a wheelchair...a titanium chair built in
America to fit her body. This is nothing unusual, wheelchairs for active
users are high end and there are only two companies that are contenders.
This is very necessary to minimise shoulder/arm strain which inevitably
comes with self-propelling. There are "endless" options on the chair -
it has taken quite a few late night hours of research to look at pros
and cons. Wheelchair salesman got a shock, a mother that actually knew
her stuff! Well, knowledge is power and we'll get a much better chair as
a result. He went back to his office chuckling, with a story to tell.
Well, brightened his day.
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| Similar to what is on order |
Still stuck in a hard place with disability funding - the conversion of
Disability funding from State to Nationally run is happening this year.
That means teething problems en masse. So when we actually get funding
for a chair etc will be interesting. Social worker is looking into other
funding bodies. We are waiting on funding really because there is going
to be many ongoing significant costs, so we need to start at the
beginning and get into the system. If all fails, we will pay for it.
Chemo! It's chemo week again. Comes around too quickly, either
Wednesday or
Thursday. Another increase in dose and lots and lots of anti-nausea!
Today Elise had her final fitting for AFO's, sounds like aliens or
something but it is just ankle braces so she can keep her achilles
tendon stretched for standing (otherwise the tighten up and it
incredibly difficult to lengthen them again. Elise thinks of them as her
new gumboots.
Tomorrow they'll bring them back trimmed. A relief to get the enormous, ill-fitting temporary ones off - her duck feet look.
